It’s a small world

This is a reality blog. Don’t worry, I am ok. I really am. These days are long and the world is starting to open while my(our) world gets smaller. I am now out of respite hours so down to minimal time away from Sam. She’s still not back at her adult day program and most likely won’t be until 2022.

This is a time in our lives where we should be able to get away and not worry about childcare. Kids are old enough, let’s get away whenever! Not happening here. Sam is so bad now that we do not even go out to dinner that isn’t at 4pm. Every time I think this I think of eating at Sizzler. Strange, but true. We need to be here to get her to bed. No more Vegas trips. No more so many things. It is a hard realization, but I also know we are lucky to have had all the get aways over the years. Or so I keep telling myself. Perpetually two and no longer able to walk or stand for more than 10 seconds really fucks things up.

I keep planning and unplanning trips that I take Sam. Drive her to Vegas next week? She did win money on a slot at the Vegas airport on our way back from Disney World last month. Would she win the Wynn jackpot next? Do I take her back to Disney World and stay for weeks? Options that really aren’t what I want to do, but at least I (we) wouldn’t be sitting on this couch. I am so Sheldon Cooper with my spot – my spot is the best for my wine glass. Which I need to refill…. back in a moment.

Back. My favorite 2015 Wine and Dine runDisney glass is full and thankful. And so am I. Shit, my couch just had a lot of my wine so I need to get my ass up and pour some more.

Cheers.

Nancy